Wednesday, 1 August 2012

Rainy day brings dismal report

The painting above was on a door in a small museum in Watertown, NY. It captures me everytime I look at it. It has nothing to do with my entry :)

Today I had no worries about getting my cat scan results. I have been feeling great, conquered spelunking, went on a crazy, for me, hike. No headaches, more energy,everything seemed good. Well CT scan results, not so good. In April I had 2 new tumors that were much larger than any of my others, granted still millimeters, but all under 2 digits. My 2 new ones were 10mm and 19mm. Today my ct scan showed those two tumors have grown. The 15x8 mm tumor is now 18x12 mm, this is the one that is sitting on top of my biopsy scar on the back of my lung. The other new tumor that was 11x15mm is now 17x20 mm. This is the one near my heart. They are growing quickly in comparison to my other tumors.

Dr. T told me that now is the time to start thinking about treatment again. It wasn't a rush, my organs weren't failing or anything, but the one by my heart causes concern. If it starts to inflame the lining of my heart, then it will be a big deal and we want to try to do what we can before anything drastic happens. I made the decision to start therapy right away. I am going to go the Xgeva pill way again. This is the one that I had a bad skin reaction to, but doc is going to give me a lower dosage and we will see how it goes. Just have to wait a day or two for insurance approval again, don't have $2600.00 laying around for this prescription! lol

If the pill doesn't show any progress and the tumors continue to grow, we are back to chemotherapy once every 3 weeks, chest x-rays, ct scans, bloodwork etc as long as needed. I will continue to have my bone therapy once a month during this procedure. I also have an upcoming MRI just to get my head checked, no comments from the peanut gallery!! lol

I am SO NOT HAPPY about the possibility of losing my hair for the third time. I know it's stupid but that's how I feel. Well, that's it for tonight. I am off to have an ice cream cone.

15 comments:

  1. My darling! (((Hugs))) and prayers and all my love. And hair or not, your smile is all we need to see. We love you and will be praying daily that the meds work. love ya, T

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  2. You are so inspiring Velda! Seriously! You put your children's happiness this summer above everything! Now time to get back into the fight for you! I will continue to keep you in my prayers! (and I understand the hair thing as in knowing how I felt when my mother insisted it all be cut off and I looked like a boy! Don't even pretend to understand losing it all!) Big hugs to you! Love you!
    Donna Marie

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  3. Lots of ((hugs)) & <3 V. Praying the treatments do their thing and shrink the tumors <3

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  4. I'm sorry to hear this Velda but, you seem to be in very good hands so I'm sure you will succeed in shrinking the tumors again. Hang tough!

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  5. SO sorry to hear this.
    You are more than inspiring you are my hero and someone I look up to.
    I wish there was a way to be able to give you a non-cyber hug and angelsister love. So for now this will have to do....
    (((HUGS))) (((HUGS))) (((HUGS))) (((HUGS))) (((HUGS))) (((HUGS))) (((HUGS))) (((HUGS))) (((HUGS))) (((HUGS)))
    I definitely understand that you do not want to lose your hair again.
    Here is prayers to the medicine doing it's job.
    Love ya girl!

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  6. Prayers always and all my love. Keeping fighting, my friend.

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  7. My heart fills with sadness to read your news. I have been, and continue to pray for you, and your recovery. xoxo

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  8. My sadness and heartache runs deep.

    As always, love you to the moon and back.

    xoxo

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  9. Hate hearing about the growths but you are one strong lady and you will keep fighting with all of us along to cheer you on.

    Gentle Hugs always!!!!

    Jill

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  10. I'm sorry you may have to go back on chemo, but you are so strong and I admire you greatly. Keep on fighting! My prayers are always with you. {{{HUGS}}}

    Tina

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  11. I am filled with sadness at this news but your such a fighter and we will be there to cheer you on this course as you fight this new round.

    Hugs and Love

    Venessa

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  12. What can I say that has not already been said above. I love you.

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    Replies
    1. The above comment was Sharen.

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  13. Send every possible cyberhug adn positive thought your way... Love and kisses,

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