Tuesday, 26 February 2013

Update to my update of my original post

So back from the hospital. Stopped in at Pam's to say hello, it was really quiet in there today. Then off to the hospital. Saw my oncologist first, it's NOT cellucitis,it's merely the fluid that went into my skin instead of my veins that isn't reabsorbing fast enough. Nothing they can do but manage the pain. Morphine !! Guess I'll sleep well tonight, for a change. As for the urologist, Doc took my pee asked me a ton of questions and set me up for a cystoscopy in April, yeah.It will indicate any abnormalities or problems with my bladder and surrounding organs. That's all for now!

One purpose, one needle, 3 hospital visits

So, it's back to the hospital I go today. I was already going for a late in the day urologist appointment, but now I'm going sooner for an impromptu secondary appointment. Remember my red, swollen, hot arm, a result from a screwed up IV? It's still red, swollen and hot. I called my fabulous nurse, Charity, this morning and her response was "Come on down" - but this is no game show. I can't even lift a glass :( It really hurts bad, she thought perhaps I have cellulitis. I will let you know how this visit goes.
As I mentioned, I will be visiting a urologist today as well. I'm tired and ashamed as a grown woman to be wearing diapers. I know it's all part of the process sometimes, but it sucks. If I finally get this cleared up, I'm going shopping at a girlie store. I think I can actually buy some cute stuff to wear after all the weight I lost ;)
The usual fatigue is setting in again, we've had a lot going on. My grown son is/has moved into his new apartment across the street from us :) Both little children have brought home great report cards!! I must admit somewhat shocking in some respects, but very pleased. My husband has a good job that just upped all their medical/dental/vision coverage, which quite honestly was incredible coverage already. They continue to allow him to take off all days for my appointments with pay. Knorr Brakes Ltd is an awesome company. If you happen to own a train in Brazil or China, and it needs new brakes, give them a call. *giggle*

Thursday, 21 February 2013

It's a long, long road....

The day started fine, knowing it was going to be a routinely long day with having both my pamidronate, blood work and my doctor appointment. Let me preface this by saying: they are never on time and nothing ever goes as planned. Blood work goes great, first shot in the arm, boom, done! Then the wait begins. Appointment is for 11:00am. It's 11:00 am. Continue to wait. A thought suddenly pops in my head. I wonder if the receptionist ordered my pamidronate from chemo, wouldn't be the first she's forgotten, which can result in an hour long wait. Sure enough, she forgot and ordered it while I stood there. Dare I mention she was the same one who lost my papers about an issue last year that I had to have redone and redelivered. Anyway, Get the holler for my name and head to the scales. To my surprise and delight even the hospital scales had me below 200! It was usually about 5 lbs off or so. That made me happy. So far, so good. Charity, my beloved nurse comes in, takes my vitals, filled out the form regarding nausea, vomiting, fever, headaches etc. A few check marks but nothing that hasn't happened before or that we are awaiting other specialists to take a look at things. Bladder, bowels, bones, spine etc. I'm examined by Doc, nothing out of the ordinary. Then comes the "vein talk". My veins aren't doing what they are supposed to do. They roll, hide, shrink, burst, everything except allow the IV/needle to get it. It's been decided, much to my chagrin, to have a port inserted into my chest to allow greater ease with IVs and needles. Here is my white port that will be surgically placed under my skin next Friday. The woman is not me, shows how the port will look when it is healed. An X-ray showing the port. And how the port works. I'm scared for next Friday, I hoped it wouldn't come to this, but I can't keep putting these poor nurses through trying to find those stupid little veins, this will be so much easier for them. (Source: Photo of woman) So we head home, stop for a little lunch, my arm is sore as we are driving, but I figure it's because they now use these big huge IVs/needles when on me, they usually use the paediatric IV. So we eat, but it continues to get more and more sore. The IV is draining fine, so, again, I figure it's just the new needle size. Sitting at home, I notice my arm slowly swelling around the insertion site. Now I'm freaked. Show it to my husband, he says to call the hospital, they say come down right away, and we do. Apparently the 'nose' of the IV got bent and started filling my arm under the skin instead of the medication going into my vein. Damn veins, damn big IV. They take it out and send me home. So now, at nearly 4pm the next day I await the clinic to call me back because it still looks like I have a breast implant under my arm and it hurts like hell. I'll keep you posted. Until next time!! Thank you for the prayers, love and support.

Wednesday, 6 February 2013

YAHOO!!!!

 
 
 
I am finally under 200lbs again. Eating healthy and lack of appetite, that's about it. When I was first diagnosed I weighed a (grotesque in my eyes, for me) 246lbs......I had never been that big...but now I am under 200lbs for the first time in many many years. The last time I was this low was when Tammy and I joined Weight Watchers (it worked, just never stuck with it). I am so happy....Here are my ugly feet with a beautiful number between them :)