Long road...

It's been a very long and painful 6 days. My sad day a few days ago turned for the worse. It began with the visit to the hospital and discovering I had 2 clots in my lungs. These clots were not reported to my oncologist or family doctor for 21 days. So I was put on blood thinners (Fragmin) to try and dissolve or at least shrink the clots, one in each lung. So this is a bit of a repeat. Come Saturday, I woke up unable to breath. I finally caught my breath and tried to go back to sleep. Wasn't working. Ended up in ER. My pain was to the point of me screaming on top of my lungs. I was crying, nothing was helping. I eventually got 3 doses of morphine over a period of time, still no relief. Went for a CT scan and docs came to tell me I now had 4 clots, 2 in each lung. I was finally given a strong dose of dilaudid which helped with the pain. The fragmin wasn't helping dissolve the clots. I was told I would be admitted. And so began 6 days of needles, medication, scans, terrible food, being awake all night. I am now home, still working with the doctors at KGH to get my meds straightened out. I am not in very good spirits, really worried something else will go wrong. Thanks everyone who supported me in so many ways.

Sad

Having a down day after yesterday's news. Waiting for my nurse to come to "teach" me how to stab myself each day. Hurray, NOT! :(

Thud...

That's me hitting the floor, figuratively, not literally. I felt great going to today's appointment. I've been feeling very tired but well. Today I had the usual blood work done, Pamidronate inserted into my port and headed to Dr. T's office. I waited for my appointment, saw my nurse Charity, my nurse friend Lori and generally chatted to people. It was my turn so Peter and I headed into the room. My exam proceeded, we talked, and she asked me about my recent visit to emergency. I told her what had happened and that I was now fine and assumed everything was okay since I was never told otherwise. She went to check the report. She was gone awhile. When she returned I could tell something was wrong. I was told that I had blood clots, 1 in each lung and I never should have been sent home. On top of that, even though I was sent home, either emerg or my family doctor should have called me to tell me to get myself back to the hospital immediately. So I have two blood clots that I've been walking around with for 22days. NOT HAPPY!!!! Very angry that the proper procedures were not taken to inform either my oncologist or ME!! So I had my first injection at the hospital today. Tomorrow a nurse will come in and go more in depth about the medication including how/where to inject it. Then, if I feel comfortable, I will do my daily injections myself each day. *Sigh* figured when everything was going so well, something had to rear it's ugly head. My new medication is called Fragmin. Another day in the life of cancer.